Co-created data governance frameworks for youth mental healthcare: Values, principles, and implementation-A scoping review.

ABSTRACT:

Background

The collection, storage, and use of data are essential elements for advancing mental health services, clinical care, and policy. Data governance is the framework of rules and processes that guide decisions impacting how data are stored, accessed, and controlled, and is foundational for the ethical management of data overall. As digital data practices grow, governance models must reflect the values of different communities. This scoping review aims to (1) understand the values and principles that are important to youth in the governance of their mental health data, (2) identify existing implementations of co-created frameworks of values and principles for data governance, and (3) explore opportunities for integration with existing data governance frameworks.

Methods

SUBMITTER: Rodriguez Duque S 

PROVIDER: S-EPMC12743833 | biostudies-literature | 2025 Jan-Dec

REPOSITORIES: biostudies-literature