Characterizing the Experiences and Educational Needs of Patients and Caregivers During the Kidney Transplant Process.

ABSTRACT:

Background

Kidney transplantation, a life-saving therapy for children with kidney disease, remains challenging to navigate for patients and families.

Objective

To elucidate the experiences and educational needs of patients who have received a kidney transplant and their caregivers.

Design

Qualitative descriptive study.

Setting

One province in Canada (Saskatchewan).

Patients

Patients who received a pediatric kidney transplant, transplant recipients and caregivers.

Methods

Semi-structured interviews were conducted via video or by phone and recorded and transcribed verbatim in this qualitative descriptive study. Qualitative content analysis was used to analyze the data. Decontextualization involved an inductive approach, whereby the text was coded an

SUBMITTER: Ruhl M 

PROVIDER: S-EPMC12745526 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature