"…I feel like I am just staying here waiting for death": A qualitative study of the lived experiences of people with advanced illness in refugee settlements in Uganda.

ABSTRACT: Refugees and migrants with advanced illness frequently face fragmented and inconsistent access to health services. Structural barriers delay symptom management, undermine continuity of care, and limit access to palliative support. A clearer understanding of their lived experiences is essential to inform equitable health system responses and inclusive models of care. This study explored the lived experiences of individuals with advanced illness in three refugee settlements in Uganda to identify contextually grounded strategies for improving access to and delivery of palliative care. In-depth semi-structured interviews were conducted with 44 purposively sampled refugees living with advanced illnesses, reflecting varied conditions, ages, and care experiences. A descriptive phenomenological ap

SUBMITTER: Song N 

PROVIDER: S-EPMC12747433 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature