Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media.

ABSTRACT:

Objective

To ascertain the perspectives of caregivers and patients with giant cell arteritis (GCA) and/or polymyalgia rheumatica (PMR) and the impact of disease on quality of life (QOL) and identify their unmet needs through social media listening.

Methods

This retrospective study analysed social media posts from the USA and Germany between 1 August 2022 and 1 August 2023. A keyword search query retrieved posts addressing key research questions from various social media platforms using the Sprinklr tool. Natural language processing was used to assess the relevance of the posts, followed by a manual analysis to identify themes, map key topics and derive insights.

Results

Of 1001 unique posts, 517 were from patients or caregivers; these yielded 919 references to specifi

SUBMITTER: Mackie SL 

PROVIDER: S-EPMC12758118 | biostudies-literature | 2026

REPOSITORIES: biostudies-literature