Research opportunities in precision oncology: perspectives on biospecimen and genomic data sharing from adults with cancer in Ireland.

ABSTRACT:

Background

Although surveys of people living with cancer in other nations have generally found a high degree of willingness to donate to research services such as genomic databases and biobanks, results may vary between countries. Additional questions also remain surrounding issues such as preferred model of consent, reporting of findings and concerns surrounding potential commercial application of health data.

Methods

Data was gathered from 176 adults living with and beyond cancer in Ireland over a 16-month period, utilising an online survey platform. Descriptive statistics were used to characterise the survey cohort, with relationships between variables tested using the Spearman correlation or chi-square analysis.

Results

Twenty-eight percent of respondents had prev

SUBMITTER: O'Grady S 

PROVIDER: S-EPMC12769628 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature