Caring for the child with intestinal failure on home parenteral nutrition: A scoping review.

ABSTRACT:

Background

Children with intestinal failure have significant long-term medical needs that require continual complex procedures provided by the family caregiver in the home. This contributes to a high burden of care, leading to increased stress, anxiety, and depression. Understanding caregivers' perceptions of the homecare experience will augment healthcare providers' knowledge of how to prepare a family to provide care in the home setting.

Methods

This study focused on the caregiving experience by examining the current literature. A scoping review was conducted using the Arksey and O'Malley methodology. Comprehensive searches on the caregiver of a child with intestinal failure receiving home parenteral nutrition were conducted in PubMed, Cumulative Index to Nursing and Allie

SUBMITTER: Davis MBH 

PROVIDER: S-EPMC12775718 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature