Optimizing participant and community engagement in cancer genomic sequencing research.

ABSTRACT:

Purpose

We describe strategies implemented across research centers of the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network to optimize engagement of participants and communities in cancer genomics research. We also present consensus definitions of engagement and engagement optimization, informed by our shared experiences in the Network.

Methods

Key informant interviews and a document review identified engagement and optimization strategies across PE-CGS research centers. Findings were synthesized using qualitative content analysis. Consensus on definitions of engagement and optimization were developed through iterative review by PE-CGS members.

Results

PE-CGS research centers adopted tailored strategies based on community needs and scientific gaps.

SUBMITTER: Crossnohere NL 

PROVIDER: S-EPMC12777742 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature