The Teen Symposium: Engaging Adolescents and Young Adults with Sickle Cell Disease in Clinical Care and Research.

ABSTRACT:

Objective

In the US, Sickle Cell Disease (SCD) is the most prevalent genetic disorder affecting African American and Hispanic youth. Disparities in care have been reported for this population with adolescents and young adults (AYA) with SCD at increased risk for poor health outcomes. It is essential that AYA with SCD receive high quality care and have access to disease-modifying therapies, yet, engaging them in their care and clinical research studies to discover new treatments remains a challenge.

Methods

Our team developed an innovative approach to engage AYA with SCD in clinical care and research, the SCD Teen Symposium, which uses motivational interviewing strategies to educate AYA with SCD, their family members and friends while providing concurrent opportunities for re

SUBMITTER: Crosby LE 

PROVIDER: S-EPMC12781960 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature