Visualizing the Complexity of the PCORnet® Infrastructure and Implications for Designing PCORnet® Studies.

ABSTRACT:

Background

A national clinical research network such as PCORnet® must, by design, accommodate myriad approaches to support effective and efficient multisite and multinetwork research activities. Therefore, visualizing the architecture of clinical research networks is imperative to improve their utility for national scale research.

Objectives

(1) To present a methodological approach to apply system mapping methods to characterize the key actors, relationships, and exchanges within the PCORnet infrastructure for data activities. (2) To describe the findings of the PCORnet infrastructure mapping project and characterize the commonalities and heterogeneity between CRN infrastructures based on their data management and sharing activities.

Methods and design

System mapping

SUBMITTER: Koscielniak N 

PROVIDER: S-EPMC12783358 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature