Treatment expectations and goals among patients with chronic myeloid leukemia in Germany: a patient-centered perspective.

ABSTRACT: Chronic myeloid leukemia (CML) is a chronic condition with excellent long-term survival under tyrosine kinase inhibitor (TKI) therapy. However, patient priorities regarding treatment goals and quality of life remain insufficiently understood. We conducted a nationwide online survey among German CML patients in collaboration with the German CML Alliance and patient organizations to assess treatment goals at diagnosis, during therapy, and in the treatment-free remission phase. The questionnaire included validated measures of treatment satisfaction, fear of progression, and quality-of-life priorities, supplemented by newly developed items. Between November 2024 and February 2025, 582 patients (median age 56 years, 48.8% female) completed the survey. Overall TKI tolerability was rated positive

SUBMITTER: Ernst P 

PROVIDER: S-EPMC12789025 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature