Successful strategies for supporting diverse representation in Alzheimer's disease research.

ABSTRACT:

Introduction

The Emory Goizueta Alzheimer's Disease Research Center implemented targeted, community-based programs emphasizing health education and collaboration with community partners. This paper reports on their impact on research enrollment and the lessons learned.

Methods

We analyzed attendance data from in-person events for new participants in the Uniform Data Set (UDS) cohort. Using regression modeling, we examined relationships among demographics and time to UDS enrollment.

Results

From 2016 to 2024, 194 adults enrolled in the UDS. They were mostly women (59%), evenly divided between African American (AA; 54%) and non-Hispanic White (NHW; 46%) individuals, and well-educated (median 16 years). Before consent, more AA participants attended events (82.7% vs. 42.0

SUBMITTER: Trammell AR 

PROVIDER: S-EPMC12801199 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature