Exploring community perspectives on autism genetics research: Indications of supportive views and educational needs.

ABSTRACT: Autistic advocates have raised substantial concerns regarding genetics research on autism. It is yet unclear whether these concerns reflect the perspectives of the broader autism community. In a sample of 1757 Dutch autistic adults, 445 parents of autistic children and 126 legal representatives of autistic adults, we explored perspectives on genetics research. We used a pilot repeated survey, consisting of questions about the perceived importance of the heritability of autism, reasons for this importance and the desire to learn more about heritability. Over 95% of the participants found it at least a little important to know that autism is highly heritable, and 67% would like to learn more about it. Participants mentioned that they find it important to increase knowledge about the causes o

SUBMITTER: de Wit MM 

PROVIDER: S-EPMC12804430 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature