Data Set Instrument for Epidemiologic Studies of Spinal Cord Injury: Traumatic and Non-traumatic.

ABSTRACT:

Introduction

Spinal cord injury (SCI), both traumatic and non-traumatic, represents a substantial global health burden, with varying incidence and mortality rates. Despite the availability of multiple data collection tools, there is no standardized, comprehensive instrument addressing the full spectrum of SCI for epidemiologic research. This project introduces a data set for SCI epidemiologic research, developed on the Research Electronic Data Capture (REDCap) platform, to enhance comparability and facilitate data exchange.

Methods

The data set was developed through extensive literature reviews and expert panel consultations. It integrates elements from the National SCI Registry of Iran (NSCIR-IR) for traumatic SCI and the International Spinal Cord Injury Data Sets for non-t

SUBMITTER: Safdarian M 

PROVIDER: S-EPMC12804586 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature