Privacy Fact Sheets for Mitigating Disease-Related Privacy Concerns and Facilitating Equal Access to the Electronic Health Record: Randomized Controlled Trial.

ABSTRACT:

Background

The German electronic health record (EHR) aims to enhance patient care and reduce costs, but users often worry about data privacy and security. To mitigate disease-related privacy concerns, for instance, surrounding stigmatized diseases, we test the effect of privacy fact sheets (PFSs)-a concise but comprehensive transparency feature designed to increase users' perceived control over their data-on increasing EHR use in a simulated online study.

Objective

The study aimed to investigate whether displaying a PFS shortly before upload decisions must be made mitigates disease-related privacy concerns and makes uploads more likely.

Methods

In an online survey study, 393 German participants from the recruitment platform Prolific were asked to interact with a rando

SUBMITTER: von Kalckreuth N 

PROVIDER: S-EPMC12806596 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature