Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.

ABSTRACT:

Background

Adolescents with cancer have unique communication needs from other patients with cancer and adolescents without cancer. Electronic health record (EHR) patient portals offer opportunities for communication and health management, but pose challenges in balancing transparency, privacy, and health management. The 21st Century Cures Act amplified these challenges by increasing the availability of health records in patient portals. To inform portal use and policies, we analyzed advice from adolescents with cancer, their parents, and oncology clinicians regarding portal access and use.

Methods

We purposefully sampled adolescents aged 12-17 with cancer and their parents from large academic pediatric oncology centers and used convenience and snowball sampling to recruit cl

SUBMITTER: McGlynn MC 

PROVIDER: S-EPMC12817588 | biostudies-literature | 2026 Mar

REPOSITORIES: biostudies-literature