Setting priorities for how future research in multiple sclerosis in Canada considers equity, diversity and inclusion: A modified e-Delphi study.

ABSTRACT:

Background

Research studies in multiple sclerosis (MS) lack diversity.

Objective

To gain consensus on priorities about how future research in MS in Canada addresses equity, diversity, and inclusion (EDI) using a modified e-Delphi technique.

Methods

We recruited people with lived experience (people with MS (PwMS) or family members); EDI researchers; and clinicians with experience caring for PwMS. The first survey was developed based on a scoping review, EDI literature, and advisory group meetings and included items for five domains: measuring and reporting diversity characteristics, recruiting diverse research populations, role of funders, role of publishers/editors, and training. All items were rated on a 7-point scale with anchors of 1 (aspirational), 4 (achievable),

SUBMITTER: Marrie RA 

PROVIDER: S-EPMC12820007 | biostudies-literature | 2026 Jan-Mar

REPOSITORIES: biostudies-literature