Patient-reported experience measure (PREM) for patients with interstitial lung disease (ILD): modification of a pre-existing measure.

ABSTRACT:

Objective

Patient-reported experience measures (PREMs) are a key component of healthcare accountability frameworks, health policy, integrated care board commissioning and integrated care partnerships generating data which are crucial markers of patient care quality. The Rheumatoid Arthritis Patient-Reported Experience Measure (RA-PREM) incorporates the eight core elements of NHS Patient Experience Framework and is validated in a range of rheumatic conditions. Our objective is to determine the acceptability and feasibility of the RA-PREM for an interstitial lung disease (ILD) population.

Design

A mixed-methods patient-centred approach incorporating an interdisciplinary research steering group with patient partners. Patient surveys evaluated the language and meaning of the RA-

SUBMITTER: Mandizha J 

PROVIDER: S-EPMC12820880 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature