Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability.

ABSTRACT:

Background

Patient reported experience measures (PREMs) are widely used as key indicators of value in healthcare towards improved services but are rarely applied among people with intellectual disability. Incorporating the experiences of people with intellectual disability in PREMs data is vital as this group often encounter poor healthcare access and outcomes. This study reports the coproduction of accessible PREMs for people with intellectual disability from a 3-year inclusive research project called Listen to Me.

Objective

To coproduce a PREM suitable for people with intellectual disability.

Method

Co-production occurred through inclusive data collection methods in five hybrid co-production workshops within an inclusive research project structure. Preliminary user

SUBMITTER: Newman B 

PROVIDER: S-EPMC12828785 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature