Understanding barriers to transition from pediatric to adult care among young adults with sickle cell disease to develop a transition mentor program.

ABSTRACT:

Objective

Patients with sickle cell disease require lifelong comprehensive care, necessitating patient compliance with primary care appointments, specialty clinical visits, medications, transfusions, and regular health maintenance. As patients transition from pediatric care to adult care, they are at risk for lapses in care that can result in serious complications, making the period of transition a medically vulnerable time. The goal of this study was to use formative interviews to identify targets for a mentoring intervention to improve transition outcomes.

Methods

Ten young adults preparing to transition and 10 young adults within 10 years of their transition (ages 18-30 years) completed a semi-structured interview. Interviews were analyzed using template thematic analysis

SUBMITTER: Viola AS 

PROVIDER: S-EPMC12829914 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature