Ecological momentary assessments for patients with hereditary angioedema: a feasibility and acceptability controlled study.

ABSTRACT:

Introduction

Hereditary angioedema (HAE) is a rare disease imposing a significant quality of life burden. Affect monitoring via Ecological Momentary Assessment (EMA) could offer personalized psychological support by collecting repeated, ecological data in real-life, overcoming the limitations of traditional methods. This study assessed the feasibility and acceptability of an EMA protocol for affect monitoring in HAE patients vs. healthy controls (CTR).

Methods

HAE patients and CTR were recruited for a 16-week EMA study. Participants received weekly EMA surveys assessing affect via REDCap™. Feasibility was evaluated through recruitment, response, and completion rates. Acceptability was assessed via a post-study questionnaire through a visual analogue scale ranging from 1 to 1

SUBMITTER: Parati M 

PROVIDER: S-EPMC12833764 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature