"The more you learn, the more you can influence"-learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden.

ABSTRACT:

Introduction

Parkinson's disease (PD) is the fastest growing neurological condition, making it a public health concern. There is still much to be learned about this complex disease, and citizen science-the involvement of the public in scientific research-has been used for public health initiatives in other conditions. Meaningful engagement in science requires knowledge and skillset to do so, including a foundational understanding of one's condition. Learning circles are a well-established peer-learning format which have been used for patient education in other conditions.

Aim

To explore the potential of learning circles for strengthening self-care and citizen science in Parkinson's disease.

Methods

Four rounds of online learning circles (6-9 persons with PD, 1 h/week

SUBMITTER: Luckhaus JL 

PROVIDER: S-EPMC12847296 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature