Defining patients living long-term with incurable cancer: A modified hybrid Delphi study.

ABSTRACT:

Background

Therapeutic advances have significantly extended survival for certain groups of patients with incurable cancer, creating a growing population living long-term with incurable cancer. However, the absence of standardized definitions and terminology has contributed to limited recognition of this distinct group and their specific care needs.

Aim

To achieve consensus on definitions and terminology for patients living long-term with incurable cancer by incorporating perspectives of patients, informal caregivers, healthcare professionals, and other relevant stakeholders.

Design

A modified hybrid Delphi study, comprising focus groups and a three-round Delphi consensus process.

Setting/participants

Three focus groups were conducted with patients (n = 1

SUBMITTER: Bouma R 

PROVIDER: S-EPMC12852490 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature