Conceptual Development Informing the Kidney Failure Patient Life Goals Survey.

ABSTRACT:

Rationale & objectives

To report on the qualitative study supporting concept elicitation and item development for a new survey assessing discussion of patient life goals (D-PaLS) for people with kidney failure (KF) on maintenance dialysis.

Study design

Three-stage qualitative data collection using a semi-structured group discussion format with an expert panel (stage 1); 2 focus groups (stage 2); and cognitive debriefing interviews (stage 3).

Setting & participants

All participants were recruited nationally in the United States to obtain a diverse convenience sample of KF patients with maintenance dialysis experience, nephrologists, and dialysis clinic staff.

Analytic approach

Qualitative analysis of major themes to support life goals concept elicitation and sur

SUBMITTER: Dahlerus C 

PROVIDER: S-EPMC12856444 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature