Embedding public and patient involvement in childhood stuttering research: lessons learned from engaging children and families in Saudi Arabia.

ABSTRACT:

Background

Public and Patient Involvement (PPI) is increasingly recognised as essential for ensuring health research is relevant, inclusive, and responsive to local contexts. However, in many regions of the Middle East, including Saudi Arabia, PPI remains underdeveloped. This commentary presents a reflective account of how PPI was embedded throughout a multi-method doctoral study exploring the experiences of Saudi children who stutter (CWS).

Main body

This paper describes how ten Arabic-speaking contributors, including three children (aged 8 to10 years), two parents, two teachers, and three speech and language therapists, participated across six phases of the doctoral research: 1)planning, 2) recruitment, 3) pre-data collection, 4) data collection, 5) dissemination, and 6) e

SUBMITTER: Alhazimi AY 

PROVIDER: S-EPMC12903678 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature