Digital Health Tools Embedded in a Cancer Genetics Clinic: Observational Study.

ABSTRACT:

Background

Digital Health Tools (DHTs), including wearables and mobile apps, offer promising avenues for personalized care and real-time monitoring, but user engagement and clinical utility-especially in pediatric populations-remain unclear. Li-Fraumeni syndrome (LFS) is a genetic mutation in the TP53 tumor suppressor gene, predisposing individuals to cancer, requiring lifelong surveillance and associated psychological stress.

Objective

We evaluated engagement with DHTs in a cancer genetics clinic for families affected by LFS and explored their utility for patients and clinicians. Our goal was to identify insights that could inform future integration of DHTs in chronic disease populations and contribute to research.

Methods

We conducted an observational study (January

SUBMITTER: Nagaraj S 

PROVIDER: S-EPMC12910266 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature