Serious Illness Conversation in the Care of Atypical Parkinsonian Disorders: A Practical Guide for Neurology Clinicians.

ABSTRACT:

Background

Compared to Parkinson's disease, atypical parkinsonian disorders (APD) are characterized by a more rapidly progressive course, often leading to profound disability. Effective communication between clinicians, patients, and care partners is essential to support patient-centered care and shared decision-making. However, most neurologists lack formal training in serious illness conversations (SIC).

Objective

To develop a practical SIC guide tailored to the needs of individuals with APD.

Methods

Members of the CurePSP Centers of Care Palliative Care Working Group, in collaboration with a SIC education expert (TC), developed a SIC guide for APD. A literature review was conducted, followed by online consensus-building rounds.

Results

Applying core communic

SUBMITTER: Bruno MK 

PROVIDER: S-EPMC12911517 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature