Development of a resource use measure to capture costs related to unpaid care for people living with non-memory led dementia: a modified Delphi study.

ABSTRACT:

Objectives

To determine the personal, National Health Service and wider societal resource use in relation to caring responsibilities for carers of people living with non-memory led dementias (NMLDs); and to design a resource use measure (RUM) that can be delivered in the Better Living with Non-memory-led Dementia (BELIDE) randomised controlled trial, part of the Rare Dementia (RD) - TALK research programme.

Design

The first stage was to identify and review any existing RUMs that could be used or adapted to the trial population and setting. If no measures were identified, the second stage was initial informal discussions with healthcare professionals (HCPs) and the programme patient and public involvement representatives to inform the perspective, settings of care and main re

SUBMITTER: Cullen K 

PROVIDER: S-EPMC12911721 | biostudies-literature | 2026 Feb

REPOSITORIES: biostudies-literature