"We Don't Know What to Do With an Adult" A Qualitative Study of Cerebral Palsy Transition Gaps.

ABSTRACT:

Objective

To increase our understanding of the transition experiences and care gaps of young adults with cerebral palsy (CP) who recently transitioned to adult-based care.

Design

Qualitative descriptive study using semistructured interviews.

Setting

Adult-based CP specialty clinic.

Participants

Eligible adults with CP were between the ages of 18 and 40 years, English speaking, and seen in the adult CP clinic at least once. Caregivers were eligible if they were the primary support person for an adult with CP who met study criteria and were English speaking. Participants were purposefully sampled to promote diversity of demographic background and level of functional mobility. The total number of participants in our study was N=27.

Interventions

Not applica

SUBMITTER: Sarmiento CA 

PROVIDER: S-EPMC12915698 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature