Establishing a set of acceptable demographic questions for use in health research through public consultation.

ABSTRACT:

Background

The importance of inclusivity in health care and health research is increasingly recognised in the UK. However, there are currently no UK standards for collecting self-reported demographic data from research participants. To address this gap, we undertook a public involvement activity. We worked with patient and public involvement partners and members of the public to establish an acceptable set of demographic questions for adult participants, taken from national survey questions to ensure comparable data.

Methods

Our project team, which included two patient and public involvement partners, selected demographic questions that covered characteristics protected by the UKs Equality Act 2010 or groups identified as potentially underserved in research. These questions

SUBMITTER: Lidington E 

PROVIDER: S-EPMC12924441 | biostudies-literature | 2026 Jan

REPOSITORIES: biostudies-literature