Expert consensus on patient engagement strategies for improving patient activation and shared decision making in pulmonary arterial hypertension.

ABSTRACT:

Background

Patient engagement leads to improved disease outcomes; however, an unmet need exists for understanding and disseminating the benefits of patient engagement and shared decision making (SDM) in pulmonary arterial hypertension (PAH).

Purpose

To develop an expert consensus on strategies for patient engagement and SDM in PAH.

Methodology

United States (US)-based physicians (n = 5), Advanced Practice Providers (n = 5), and Registered Nurses (RNs; n = 3) who are responsible for managing patients with PAH were recruited to a double-blinded modified-Delphi panel (two survey rounds and a virtual consensus meeting). Consensus was defined as ≥80% of panelists rating their agreement or disagreement using a 9-point Likert scale.

Results

Engaged patients actively p

SUBMITTER: Ryan JJ 

PROVIDER: S-EPMC12940626 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature