The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents.

ABSTRACT:

Background

The European DISABKIDS project aims to enhance the Health Related Quality of Life (HRQoL) of children and adolescents with chronic medical conditions and their families. We describe the development of the seven cross-nationally tested condition-specific modules of the European DISABKIDS HRQoL instrument in a population of children and adolescents. The condition-specific modules are intended for use in conjunction with the DISABKIDS chronic generic module.

Methods

Focus groups were used to construct the pilot version of the DISABKIDS condition-specific HRQoL modules for asthma, juvenile idiopathic arthritis, atopic dermatitis, cerebral palsy, cystic fibrosis, diabetes and epilepsy. Analyses were conducted on pilot test data in order to construct field test versions

SUBMITTER: Baars RM 

PROVIDER: S-EPMC1326227 | biostudies-literature | 2005 Nov

REPOSITORIES: biostudies-literature