Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

ABSTRACT:

Objectives

To assess patients' preferred method of consent for the use of information from electronic medical records for research.

Design

Interviews and a structured survey of patients in practices with electronic medical records.

Setting

Family practices in southern Ontario, Canada.

Participants

123 patients: 17 were interviewed and 106 completed a survey.

Main outcome measures

Patients' opinions and concerns on use of information from their medical records for research and their preferences for method of consent.

Results

Most interviewees were willing to allow the use of their information for research purposes, although the majority preferred that consent was sought first. The seeking of consent was considered an important element of respect fo

SUBMITTER: Willison DJ 

PROVIDER: S-EPMC148897 | biostudies-literature | 2003 Feb

REPOSITORIES: biostudies-literature