Views of potential research participants on financial conflicts of interest: barriers and opportunities for effective disclosure.

ABSTRACT:

Background

There is little guidance regarding how to disclose researchers' financial interests to potential research participants.

Objective

To determine what potential research participants want to know about financial interests, their capacity to understand disclosed information and its implications, and the reactions of potential research participants to a proposed disclosure statement.

Design and participants

Sixteen focus groups in 3 cities, including 6 groups of healthy adults, 6 groups of adults with mild chronic illness, 1 group of parents of healthy children, 1 group of parents of children with leukemia or brain tumor, 1 group of adults with heart failure, and 1 group of adults with cancer.

Approach

Focus group discussions covered a range of topics inc

SUBMITTER: Weinfurt KP 

PROVIDER: S-EPMC1831594 | biostudies-literature | 2006 Sep

REPOSITORIES: biostudies-literature