Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study.

ABSTRACT:

Background

The Italian Twin Registry (ITR) has been carrying out several genetic-epidemiological studies. Collection and storage of biological material from study participants has recently increased in the light of biobanking development. Within this scenario, we aimed at investigating understanding, awareness and attitude towards blood/DNA donation of research participants. About these quite unknown dimensions more knowledge is needed from ethical and social perspectives.

Methods

Cross-sectional mail survey to explore three dimensions: (i) understanding of aims and method of a specific study, (ii) attitude (three ideas for donation: "moral duty", "pragmatism", "spontaneity") and (iii) awareness (i.e. the recall of having been asked to donate) towards blood/DNA donation for

SUBMITTER: Toccaceli V 

PROVIDER: S-EPMC2703640 | biostudies-literature | 2009 Jun

REPOSITORIES: biostudies-literature