Continuity of care for children with complex chronic health conditions: parents' perspectives.

ABSTRACT:

Background

Continuity of care has been explored largely from academic and service provider perspectives, and in relation to adult patient/client groups. We interviewed parents of children with complex chronic health conditions to examine how their experiences and perceptions of continuity of care fit with these perspectives; and to identify the salient factors in the experience of, and factors contributing to, continuity in this population.

Methods

Parents of 47 elementary school-aged children with spina bifida, Down syndrome, attention-deficit/hyperactivity disorder, Duchenne muscular dystrophy or cystic fibrosis participated in semi-structured interviews. Parents described and mapped the pattern of their interactions with service providers over time in all domains relevant

SUBMITTER: Miller AR 

PROVIDER: S-EPMC2805629 | biostudies-literature | 2009 Dec

REPOSITORIES: biostudies-literature