Development and initial validation of quality-of-life questionnaires for intermittent exotropia.

ABSTRACT:

Purpose

The development and initial validation of patient-derived, health-related quality-of-life (HRQOL) questionnaires for intermittent exotropia (IXT).

Design

Cross-sectional study.

Participants

In a development phase, 27 children (age, 2-17 years) with IXT and 1 of their parents. In an initial validation phase, 33 children with IXT and 49 control children (age, 5-17 years), along with 1 parent for each child. Children in the control group had no strabismus or amblyopia.

Methods

Individual patient interviews generated 35 items for child and proxy (parental assessment of child's HRQOL) questionnaires and 46 items for a parent questionnaire. To reduce to a feasible number of items, questionnaires were administered to 5- to 17-year-old children with IXT (n = 15

SUBMITTER: Hatt SR 

PROVIDER: S-EPMC2815177 | biostudies-literature | 2010 Jan

REPOSITORIES: biostudies-literature