Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK.

ABSTRACT:

Objective

To identify common difficult decisions made by family carers on behalf of people with dementia, and facilitators of and barriers to such decisions, in order to produce information for family carers about overcoming barriers.

Design

Qualitative study to delineate decision areas through focus groups and complexity of decision making in individual interviews.

Setting

Community settings in London.

Participants

43 family carers of people with dementia in focus groups and 46 carers who had already made such decisions in individual interviews.

Results

Family carers identified five core problematic areas of decision making: accessing dementia related health and social services; care homes; legal-financial matters; non-dementia related health care; and

SUBMITTER: Livingston G 

PROVIDER: S-EPMC2923693 | biostudies-literature | 2010 Aug

REPOSITORIES: biostudies-literature