Researcher practices on returning genetic research results.

ABSTRACT:

Background/aims

as genetic and genomic research proliferates, debate has ensued about returning results to participants. In addition to consideration of the benefits and harms to participants, researchers must also consider the logistical and financial feasibility of returning research results. However, little data exist of actual researcher practices.

Methods

we conducted an online survey of 446 corresponding authors of genetic/genomic studies conducted in the United States and published in 2006-2007 to assess the frequency with which they considered, offered to, or actually returned research results, what factors influenced these decisions, and the method of communicating results.

Results

the response rate was 24% (105/446). Fifty-four percent of respondents conside

SUBMITTER: Heaney C 

PROVIDER: S-EPMC3001830 | biostudies-literature | 2010 Dec

REPOSITORIES: biostudies-literature