Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study.

ABSTRACT:

Objectives

To understand the perspectives of people with severe chronic obstructive pulmonary disease (COPD) as their illness progresses, and of their informal and professional carers, to inform provision of care for people living and dying with COPD.

Design

Up to four serial qualitative interviews were conducted with each patient and nominated carer over 18 months. Interviews were transcribed and analysed both thematically and as narratives.

Participants

21 patients, and 13 informal carers (a family member, friend, or neighbour) and 18 professional carers (a key health or social care professional) nominated by the patients.

Setting

Primary and secondary care in Lothian, Tayside, and Forth Valley, Scotland, during 2007-9.

Results

Eleven patients died dur

SUBMITTER: Pinnock H 

PROVIDER: S-EPMC3025692 | biostudies-literature | 2011 Jan

REPOSITORIES: biostudies-literature