Development of a proxy-reported pulmonary outcome scale for preterm infants with bronchopulmonary dysplasia.

ABSTRACT:

Background

To develop an accurate, proxy-reported bedside measurement tool for assessment of the severity of bronchopulmonary dysplasia (also called chronic lung disease) in preterm infants to supplement providers' current biometric measurements of the disease.

Methods

We adapted Patient-Reported Outcomes Measurement Information System (PROMIS) methodology to develop the Proxy-Reported Pulmonary Outcomes Scale (PRPOS). A multidisciplinary group of registered nurses, nurse practitioners, neonatologists, developmental specialists, and feeding specialists at five academic medical centers participated in the PRPOS development, which included five phases: (1) identification of domains, items, and responses; (2) item classification and selection using a modified Delphi process; (3

SUBMITTER: Massie SE 

PROVIDER: S-EPMC3161834 | biostudies-literature | 2011 Jul

REPOSITORIES: biostudies-literature