Consenting to health record linkage: evidence from a multi-purpose longitudinal survey of a general population.

ABSTRACT:

Background

The British Household Panel Survey (BHPS) is the first long-running UK longitudinal survey with a non-medical focus and a sample covering the whole age range to have asked for permission to link to a range of administrative health records. This study determines whether informed consent led to selection bias and reflects on the value of the BHPS linked with health records for epidemiological research.

Methods

Multivariate logistical regression is used, with whether the respondent gave consent to data linkage or not as the dependent variable. Independent variables were entered as four blocks; (i) a set of standard demographics likely to be found in most health registration data, (ii) a broader set of socio-economic characteristics, (iii) a set of indicators of healt

SUBMITTER: Knies G 

PROVIDER: S-EPMC3330014 | biostudies-literature | 2012 Mar

REPOSITORIES: biostudies-literature