What parents of children who have received emergency care think about deferring consent in randomised trials of emergency treatments: postal survey.

ABSTRACT:

Objective

To investigate parents' views about deferred consent to inform management of trial disclosure after a child's death.

Methods

A postal questionnaire survey was sent to members of the Meningitis Research Foundation UK charity, whose child had suffered from bacterial meningitis or meningococcal septicaemia within the previous 5 years. Main outcome measures were acceptability of deferred consent; timing of requesting consent; and the management of disclosure of the trial after a child's death.

Results

220 families were sent questionnaires of whom 63 (29%) were bereaved. 68 families responded (31%), of whom 19 (28%) were bereaved. The majority (67%) was willing for their child to be involved in the trial without the trial being explained to them beforehand; 70% w

SUBMITTER: Gamble C 

PROVIDER: S-EPMC3346812 | biostudies-literature | 2012

REPOSITORIES: biostudies-literature