Public's approach to surrogate consent for dementia research: cautious pragmatism.

ABSTRACT:

Objectives

To describe how members of the older general public deliberate with one another in finding solutions to the dilemma of involving persons with decisional incapacity in dementia research.

Design, setting, and participants

One hundred sixty persons age 50 years and older who participated in an all-day deliberative democracy session on the ethics of surrogate consent for dementia research. The deliberative democracy day consisted of both extensive, interactive education with experts in clinical research and ethics, as well as small group deliberations.

Measurements

Audiotaped small group deliberations were transcribed and analyzed and the main thematic elements were coded.

Results

During deliberation, participants acknowledged the limitations of advanced

SUBMITTER: De Vries R 

PROVIDER: S-EPMC3357450 | biostudies-literature | 2013 Apr

REPOSITORIES: biostudies-literature