An exploratory survey of end-of-life attitudes, beliefs, and experiences of adolescents with HIV/AIDS and their families.

ABSTRACT:

Context

For youths with life-limiting conditions, little is known regarding families' understanding of their adolescent's wishes for end-of-life (EOL) care.

Objectives

To examine congruence in HIV positive adolescents and their families' thoughts about death and dying.

Methods

The Lyon Advance Care Planning Survey-Adolescent and Surrogate versions were administered within a randomized controlled trial. Participants (n=48) were medically stable adolescents aged 14-21 years with HIV/AIDS and their families. Congruence was measured by intraclass correlation coefficients (ICCs) for continuous variables and by kappa for ordinal or dichotomous responses.

Results

Adolescent participants were as follows: mean age 16.6 years (range 14-21); 37.5% males; 92% African Ameri

SUBMITTER: Garvie PA 

PROVIDER: S-EPMC3432673 | biostudies-literature | 2012 Sep

REPOSITORIES: biostudies-literature