A national internet-linked based database for pediatric interstitial lung diseases: the French network.

ABSTRACT:

Background

Interstitial lung diseases (ILDs) in children represent a heterogeneous group of rare respiratory disorders that affect the lung parenchyma. After the launch of the French Reference Centre for Rare Lung Diseases (RespiRare®), we created a national network and a web-linked database to collect data on pediatric ILD.

Methods

Since 2008, the database has been set up in all RespiRare® centres. After patient's parents' oral consent is obtained, physicians enter the data of children with ILD: identity, social data and environmental data; specific aetiological diagnosis of the ILD if known, genetics, patient visits to the centre, and all medical examinations and tests done for the diagnosis and/or during follow up. Each participating centre has a free access to his own pa

SUBMITTER: Nathan N 

PROVIDER: S-EPMC3458912 | biostudies-literature | 2012 Jun

REPOSITORIES: biostudies-literature