The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community.

ABSTRACT:

Background

In developing the PatientsLikeMe online platform for patients with Multiple Sclerosis (MS), we required a patient-reported assessment of functional status that was easy to complete and identified disability in domains other than walking. Existing measures of functional status were inadequate, clinician-reported, focused on walking, and burdensome to complete. In response, we developed the Multiple Sclerosis Rating Scale (MSRS).

Methods

We adapted a clinician-rated measure, the Guy's Neurological Disability Scale, to a self-report scale and deployed it to an online community. As part of our validation process we reviewed discussions between patients, conducted patient cognitive debriefing, and made minor improvements to form a revised scale (MSRS-R) before deployin

SUBMITTER: Wicks P 

PROVIDER: S-EPMC3502161 | biostudies-literature | 2012 Jun

REPOSITORIES: biostudies-literature