National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods.

ABSTRACT:

Background

In neuroscience clinical research studies, much time and effort are devoted to deciding what data to collect and developing data collection forms and data management systems to capture the data. Many investigators receiving funding from National Institute of Neurological Disorders and Stroke (NINDS), the National Institutes of Health (NIH), are required to share their data once their studies are complete, but the multitude of data definitions and formats make it extremely difficult to aggregate data or perform meta-analyses across studies.

Purpose

In an effort to assist investigators and accelerate data sharing in neuroscience clinical research, the NINDS has embarked upon the Common Data Element (CDE) Project. The data standards developed through the NINDS CDE Pr

SUBMITTER: Grinnon ST 

PROVIDER: S-EPMC3513359 | biostudies-literature | 2012 Jun

REPOSITORIES: biostudies-literature