Adolescent perspectives on phase I cancer research.

ABSTRACT:

Background

The aim of this study was to examine adolescent patients' perspectives on their understanding and decision making about a pediatric phase I cancer study.

Procedure

Participants included adolescents ages 14-21 years with cancer (N = 20), all of whom attended a phase I study consent conference. Participants responded to closed- and open-ended questions on a verbally administered structured interview, which assessed aspects of understanding and decision making about the phase I study.

Results

All participants decided to enroll in the phase I study. The majority of participants understood that participation was voluntary, entailed risks, and that they could withdraw. Most also believed that participation in the phase I study would increase the length of their l

SUBMITTER: Miller VA 

PROVIDER: S-EPMC3538102 | biostudies-literature | 2013 May

REPOSITORIES: biostudies-literature