Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences.

ABSTRACT:

Objective

To assess the inclusion of patients as international research partners in Outcome Measures in Rheumatology (OMERACT) conferences and how this has influenced the scope and conduct of outcomes research in rheumatology.

Design

A thematic content analysis of OMERACT internal documents, publications and conference proceedings, followed by a responsive evaluation including 32 qualitative semistructured interviews.

Setting

The international, biannual research conference OMERACT 10 (Malaysia, 2010).

Participants

Senior researchers (n=10), junior researchers (n=2), representatives of the pharmaceutical industry and regulators (n=2), conference staff (n=2), new patient delegates (n=8) and experienced patient delegates (n=8).

Results

The role of patients

SUBMITTER: de Wit M 

PROVIDER: S-EPMC3651970 | biostudies-literature | 2013 May

REPOSITORIES: biostudies-literature