Consent for the use of human biological samples for biomedical research: a mixed methods study exploring the UK public's preferences.

ABSTRACT: A mixed-methods study exploring the UK general public's views towards consent for the use of biosamples for biomedical research. Cross-sectional population-based focus groups followed by an online survey. 12 focus groups (81 participants) selectively sampled to reflect a range of demographic groups; 1110 survey responders recruited through a stratified sampling method with quotas set on sex, age, geographical location, socioeconomic group and ethnicity. (1) Views on the importance of consent when donating residual biosamples for medical research; (2) preferences for opt-in or opt-out consent approaches and (3) preferences for different consent models. Participants believed obtaining consent for use of residual biosamples was important as it was 'morally correct' to ask, and enabled people

SUBMITTER: Lewis C 

PROVIDER: S-EPMC3740244 | biostudies-literature | 2013 Aug

REPOSITORIES: biostudies-literature